A person reading about a rare condition is identifiable by their interest alone. That is the reason this site collects nothing rather than collecting carefully, and it is why the decision is recorded here in terms a reader can check against what the site actually does.
What is stored on your own device
Your display choices — theme, motion, contrast, text size and link emphasis — are kept in your browser's local storage so the site does not forget them between visits. They stay on your device, are never sent to a server, and clearing your browser data removes them.
Before any of this changes
- A lawful basis for each purpose, approved by the owner
- A retention schedule, stated on this page before collection begins
- A named receiving inbox and an operational process for what arrives in it
- Security controls appropriate to what is held
- This page updated first, and the change recorded as a correction
This page names no retention period, no lawful basis and no processor, because none has been approved. If a measurement or enquiry service is ever enabled, those details are written here before it is switched on — not afterwards.
It would be cookieless, self-hosted, and processed in the United Kingdom or the European Union, recording counts of a fixed list of events and nothing else. Search text, enquiry fields, accessibility preferences and anything describing or inferring health are not collected — the measurement interface accepts no properties at all, so there is no channel for them.